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Saturday, November 23, 2019

WHY I GHOSTED YOU


Oh my, doesn’t being “ghosted” sound EXCITING!  Damn, if I didn’t know what that means (according to boring old urban dictionary), I’d be like “SIGN ME UP!!  I AM ALL OVER BEING GHOSTED!!!”
It SOUNDS amazing, yes, but actually?
It’s just a much sexier way of saying someone has totally blown you off.
Wait, now I’m confused about which one is a sexier way of saying you are being ignored?

Anyhow.

One thing that has consistently AMAZED ME about my blog:  PEOPLE ACTUALLY READ IT.  Seriously, God Bless you, everyone of you and I LOVE interacting with the wonderful world about my silly musings.  Peak experience for me, really and again:  THANK YOU.

So why did I very abruptly stop doing this about 8 months ago?  Hmmm.  Funny story.
Well, not that funny, but I DID think I was going to actually get to BE a ghost, so THAT might have been a funny story.  For me to have told to my dead relatives.  Because I got sick.
REALLY sick.
Weird, out-of-the-blue, oh-my-god-what-is-happening SICK.
And I spent over 2K in cash (yes, my deductible) trying to figure out why, exactly, I had SUDDENLY and IRREVOCABLY become so damned SICK.
Because it was a mystery.  For months.  And months.
So, when my doctors couldn’t figure out why my limbs were suddenly going numb and I was having trouble breathing and my heart was palpitating and my vision was haloed and my ears were ringing, they did what all good health care professionals should do:  they implied that I was CRAZY.  They suggested that I take medication to mitigate my sudden-onset craziness.  When my capillaries started leaking and I developed dozens and dozens of petachie overnight and my feet turned purple and my hands turned blue, they told me they could find “no objective reason for my subjective symptoms.”
See?  Funny story, right?
Actually, it wasn’t a real doctor who said that, it was a physician’s assistant (my doctor is on vacation a lot, as it turns out), and she didn’t say it, she wrote it in a message on the patient portal, so I could insert a screen shot here, in case anyone is looking for a REALLY nurturing caregiver.
Anyhow.
TURNS OUT (when I finally saw the neurologist it took TWO and a HALF MONTHS to get an appointment with)…I had something called Guillaine Barre Syndrome.  Which explained why my limbs were going numb and I couldn’t breathe.
BUT ALSO (because why stop there?) my Guilliane Barre (which is usually caused by a virus) had been triggered by an EXTREME adverse reaction to an antibiotic I had taken for a simple skin infection.  So in addition to the excellent hallmark symptoms of Guillaine Barre, I also was having neurotoxic reactions and other dire physical manifestations.  Like, a one in a billion response to this antibiotic.
Aren’t I a lucky lady?
So all of this to say:  I stopped posting here (ghosted you) because I was trying my damndest not to ghost you in the literal sense.  Not only were there many days when I was convinced I was dying, there were many days when I would have welcomed it.  No lie.
I wrote a farewell letter to my son, which I would place on my bedside table each night in case he woke up in the morning to find a corpse.  I also wrote out plans for my funeral, including songs for my wonderful musician friends to “play me out” with; I asked that my family spread my ashes on Martha’s Vineyard, my favorite place I have ever been (and if you have not, please go because my creepy ashes are not there to get into your Mad Martha’s Ice Cream.  Yet.)
So what did I learn, when I thought I was dying and not a single member of the medical community had any help to offer me?  Actually, some surprising and amazing things:

1) I am actually not afraid of dying.  REALLY not afraid.  Fear being sick and disabled much more, funny how that works.  Like I said, at the worst point in the illness (they call it a nadir) I kept a note by the side of my bed in case my son came in one morning and found me gone.  But I actually had no fear surrounding it, which is a good thing to know.
2) TV Doctors make all real-life doctors look like uncaring, incompetent amateurs.  So ironically, and a bit humorously, TV doctors are the "truth mirror".
3) Being sick is boring.  REALLY boring.  You wake up each new day and think THIS SH*T???  AGAIN???  It's like eating the same food for 8 months.
4) I now TOTALLY get the old-fashioned days "convalescent hospitals".  In the old days, when you were sick (and rich) you got sent to some facility so no one had to deal with your boring, sick ass and you got fed rich puddings and took lots of naps.  People brought you flowers and hot tea.
We need to bring all that back.
Anyhow.
Before you ask (and you will because you are so awesome!)…

NO, I am not well yet.  Weirdly.  I developed a whole body tremor late in the game that is plaguing me and my left eye and ear will never be the same. 

SIDEBAR:  antibiotics can be poison.  Be careful, please.

NO, I am not well yet.
 
BUT…
I am no longer in imminent danger of “ghosting” you for reals.  I mean, I could get hit by a truck but…I promise I will be an INTERESTING ghost.  Maybe not as interesting as Patrick Swayze, but I’ll do my best.
And I will try to start posting here again more regularly. 
But BOTTOM LINE—I like life.  I like the people I have met and interacted with (which most likely means YOU) and I like the adventures I have had and the family I grew up in and the son I am raising.  I like the sound the floorboard heaters make and the smell of cold air and the way the sky looks at sunset.  I like being alive, but I am not afraid to die.
Best of both worlds, literally.
So, with Thanksgiving right around the corner, let’s be thankful for people both here and “gone” and be thankful for our opportunity to appreciate whatever the hell we are dealt…sometimes we hold them, sometimes we fold them, sometimes we walk away and sometimes we run…but we NEVER count our money while we’re sitting at the table.
There’ll be time enough for counting when the dealing’s done.
Or so we’ve been told.  And I believe.  Blessings to all of you.
 

 


 

 

19 comments:

  1. Welcome back. I'm sorry to hear you've been so ill over the last eight months. I hope your health continue to improve, and I'm glad your doctors finally figured out what was making you sick.

    Guillaine Barre Syndrome is a scary illness!

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    1. Thank you Lydia, it has been a rough year. I appreciate your support!

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  2. Fun to read one of your posts again, Kara, though very sorry to hear you've been struggling so. Glad you finally got some answers--it does seem like it takes longer than ever. Having grown up on a ranch, we often thought the vets were better at diagnosing! But at least now you know and can work with it (hopefully) to keep feeling better. :O)

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    1. I may end up at the vet yet! So many questions the doctors can't answer. Thanks for reading!

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  3. Ummm as if you weren't already one of my FAVORITE people in the world, you go and quote my Guru Kenny Rogers or as I know him (as if personally) "Kenny"...I have missed you but I get it...hopeful we can re-ignite our yearly reunion this summer of 2020. Hope you continue to get healthy...what a scary year for you! Love you!!~Lori

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    1. Thanks, honey. it broke my heart not to see you this year, but I was barely managing at that point. Love and miss all of you xo

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  4. Holy crap. Wow. That is CRAZY - not you crazy, but the whole scenario crazy. Reminds me of a Golden Girls episode where doctors would not believe Dorothy when she knew she was ill. I'm glad you're writing again, because that means you're at least feeling up to it and also because we get to read you again! Yay. Here's to your continued improvement and future health. xo

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    1. Thanks and YES. This was a real wake up call to me about our healthcare system. Amazing any of us survive it. Good to be writing again, makes me feel like "me" again".

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  5. Well heck, I had no idea that you were ill, dear sister. I hope you are on your way to as much of a recovery as is possible. Love you much. Happy Thanksgiving

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  6. Oh Kara, what a time you have had. So sorry to hear you are unwell, though good to finally have a diagnosis. Hope you are more and more on the mend every day, look forward to reading your posts again :)

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    1. Thank you Judith, and thank you for reaching out to me during this horrible year. I was having a really hard time talking about it in a cogent way, but your concern was so appreciated. xo

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  7. Eating the same ROTTEN food for 8 months. I'm sorry you're having such hard time. I knew you were struggling, but didn't know it was still happening. (As in my situation, people think if they don't hear anything, all is well--even when it's not). I have never confronted death in this way or written letters to my sons. I often tell people who ask me what they can do for those they love and I suggest they leave a letter because it will cherished forever, as I cherish the notes my husband randomly left around. I'm sad you have lasting symptoms and hope they diminish in time and all of this becomes a memory that allows you to say, "I survived, I learned a lot, I'm so damned glad it's behind me. And if you have lasting changes, then that's the nature of body and another lesson. I love life, too. Death doesn't frighten me, but sometimes getting there is rough. Let's have more life, more gratitude for each sunrise, and more compassion and kindness toward our fragile human condition. Sending you piles of love and healing light.

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    1. Thank you, Elaine. I always feel your support and love. xo

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  8. O.M.G. You are the BEST non-complainer for this situation! I had no freakin' clue you were this bad off. Thanks for not ghosting the GMP biz team. Best wishes for more good hours than bad.

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    1. Work was all I had to keep me from obsessing about being sick. And I couldn't do much physically, so sitting at the computer and sleeping became my life for a while. Glad I am able to get out in the world again!

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  9. Holy crap Kennedy!! So glad you’re doing better and will be praying for healing emotionally and physically from this ordeal. Also, I have a great remedy for neurotoxicity from Grandma Klote...let me know if you need it�� Love you my friend.

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  10. Hi Kara,

    I just read this and I am hoping that you are well and then some! I hope you remember me; I wrote a post for your site a few years ago. :-)

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